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Dargo's little girl needs our prayers
- Thread starter working woman
- Start date
ki0ho
Active member
Have some good rest and beware of strange tasting toothpastes.
I've been where you are Brent. Maybe all of us here have at one time.
You cannot function when someone you love with all your might isn't well.
Hang tough.. and kiss Melanie on the cheek for all of us.
I did that once with brillcream hair cream in a tube...ONLY ONCE!
Hopefully, it was just "a little dab"
Here's hoping Brent is getting some much needed rest, and that Melanie is as comfortable as can be expected at this hour.
Okay, I was going to argue a bit (hey, it's in my DNA), but I think you're right. I kept tossing and turning so I thought I'd go back to the hospital. My overload of coffee had my mouth tasting nasty so I brushed my teeth and started to leave. Damn if I didn't have the nastiest taste in my mouth. I went back to check out what brand toothpaste was so I wouldn't buy it again, and discovered that I just brushed my teeth with my youngest daughter's zit cream!That stuff tastes like crap!!
In all the stress, I thought I'd tell that small bit of humor. I don't want to take anything to make me sleep since Mel wants to watch football with me tonight, but I do think I'm going to lay down again...
Sure glad it wasn't prep H
Galvatron
Spock and Galvatron < one and the same
No m8 there as not been.....Praying hard and will keep checking in for with the hope of positive news.
rback33
Hangin in Tornado Alley
I caught this thread briefly the day it started and have not been back to the forum since. My thoughts and prayers are with you and your family Brent. It's remarkable what can happen when you finally get help from the right people. She has a long row to hoe still but I am sure she will be well taken care of from now on. You won't settle for anything less. Get some rest. We are all right there with you.
Dargo
Like a bad penny...
Just a quick update; not a good day. Issues with BP, swelling and extreme pain are causing concern. Needless to say, it's hard to try to keep her attitude up after almost 5 months of pain and no vision and now almost a full week of the most extreme pain you can imagine. I'm beginning to get upset with the inability of the physicians to manage pain. It's like they think she's lying and they won't give her what she needs.
It should be a hint when she has ALWAYS had low BP and now they can't get her BP below 180/115. That is a direct reflection of her pain. I'm gong on a mission to get some attention one way or another. I can't watch her just lay there and suffer when I know they have better pain mgt available.
It should be a hint when she has ALWAYS had low BP and now they can't get her BP below 180/115. That is a direct reflection of her pain. I'm gong on a mission to get some attention one way or another. I can't watch her just lay there and suffer when I know they have better pain mgt available.
Brent, every action has a reaction of some type. Perhaps the stronger pain meds would inhibit her healing or something like that. It's a delicate balancing act. I hate to hear she's in such pain, but I think you have to trust the doctors (assuming more than one doctor is involved).
Best wishes for Mel and more prayers on the way. Hang in there buddy!!!!!
Best wishes for Mel and more prayers on the way. Hang in there buddy!!!!!
I feel so useless. I read this and tears come to my eyes. Sometimes prayers don't seem to be enough.
Cowboy
Wait for it.
Ditto , I'm at a loss for words but more thoughts & prayers sent your way for Mel & the entire familly , just stay strong as you have been Dargo and dont let yourselves run down .
An elevated bp and edema would be one of the (possible) side effects for the type of surgery Melanie had.
I would have thought that would have been addressed by now Brent.
If you think her team of surgeons and nurses at the hospital are yanking you all around, you need to speak with somebody.
By the way.. where is Citygirl?
She'd know a hell of a lot more than I would about advising you more in-depth on the situation.
It's frustrating just to log in here only to find nothing much is being done.
Dargo
Like a bad penny...
I just got back to the hotel room, and we are just going to have to do something different. Mel is in far worse pain than when we brought her here, they constantly miss her dosing for pain medication on 3rd shift and nobody in hospital administration is here until next week so there is nobody to complain to that will make any difference. She not only has the same pain from the tumor as before, but the added pain of brain surgery to go along with it and nobody seems to care. They keep telling us that a couple of hours either way on administering her pain meds makes no difference. First, I think that's BS and second, what they are doing is not working.
That leaves me no choice but to leave and see if I can get a hospital in our home town to admit her to manage her pain. I can't sit up here indefinitely with her in the hospital and me spending $200 or more a day for hotel and meals. Yes, it's only been a week, but she has been suffering greatly in this last week and they are talking about "a few more weeks" here now. At first they said that they doubted we'd get home for Christmas, but we wouldn't miss it by much. Now their solution simply is unacceptabe and, being right in the middle of the holidays, there isn't anyone at the hospital I can contact to voice my concerns. I'm told the surgeons only want to be contacted if it's "life or death" matters.
Yes, I'm tired, my right knee is wrecked and needs surgery badly now and I have 3 young kids at home leaving me in a panic each day to make sure they are taken care of as well as our pets. I'm not hitting the panic button, but I am hitting the "no more" button as far as status quo for doing nothing but watching my daughter lay in pain and every person who can make decisions being on vacation. The lounges at Methodist are full of people expressing the same concern; they can't just stay in a hotel or live in the lounge for another week. I'm checking out now to try to find a hospital in my home town that can administer pain meds.
That leaves me no choice but to leave and see if I can get a hospital in our home town to admit her to manage her pain. I can't sit up here indefinitely with her in the hospital and me spending $200 or more a day for hotel and meals. Yes, it's only been a week, but she has been suffering greatly in this last week and they are talking about "a few more weeks" here now. At first they said that they doubted we'd get home for Christmas, but we wouldn't miss it by much. Now their solution simply is unacceptabe and, being right in the middle of the holidays, there isn't anyone at the hospital I can contact to voice my concerns. I'm told the surgeons only want to be contacted if it's "life or death" matters.
Yes, I'm tired, my right knee is wrecked and needs surgery badly now and I have 3 young kids at home leaving me in a panic each day to make sure they are taken care of as well as our pets. I'm not hitting the panic button, but I am hitting the "no more" button as far as status quo for doing nothing but watching my daughter lay in pain and every person who can make decisions being on vacation. The lounges at Methodist are full of people expressing the same concern; they can't just stay in a hotel or live in the lounge for another week. I'm checking out now to try to find a hospital in my home town that can administer pain meds.
Good luck Brent.
I've gotta say, this whole situation at that hospital is becoming unbelievably ridiculous.
I've gotta say, this whole situation at that hospital is becoming unbelievably ridiculous.
JackieBlue
Banned
I feel so terrible for her and you. You are doing the right thing by checking into other avenues. I'm not a doctor or a nurse, but I was under the impression that the pain meds should be given on time all the time so that it's regulated and the pain doesn't have a chance to return in full force.
Continued thoughts and prayers.
Continued thoughts and prayers.
Riley is supposed to be the cream of the crop among children's hospitals in this country.
That's what bothers me.
That's what bothers me.
Any hospital should be able to administer pain meds on time. I do not know of any business who lets all the higher ups go on vacation the same week. Someone has to be in charge, and they should be able to do something. I would be up in arms also. Ridiculous. Why do a surgery on 12/23 when you know you are letting all your higher ups off the next week and the doctors only 'want' called in life and death situations. What a crock. 
rback33
Hangin in Tornado Alley
My guess is that if you tell them you are prepared to make a formal complaint to your state board of healing arts or whatever it's called there, that administration will suddenly show up. They have to be licensed by someone and when you tell them you are going to complain to that group you are bound to get a reaction. Hell, I will even look up the number for you so that you can show you are not bluffing. Good luck my friend. We are all pulling for guys.
BigAl
Gone But Not Forgotten
Any hospital should be able to administer pain meds on time. I do not know of any business who lets all the higher ups go on vacation the same week. Someone has to be in charge, and they should be able to do something. I would be up in arms also. Ridiculous. Why do a surgery on 12/23 when you know you are letting all your higher ups off the next week and the doctors only 'want' called in life and death situations. What a crock.
Agreed 100% .. Go get em !!!
Galvatron
Spock and Galvatron < one and the same
I wish i could give advice on what to do Brent but i am not in the know how on your medical system.....just try and deal with things in as calm manner you can but understandingly your patients are close to the end.
I can offer my continued Prayers and positive thoughts.
I can offer my continued Prayers and positive thoughts.
Any hospital should be able to administer pain meds on time. I do not know of any business who lets all the higher ups go on vacation the same week. Someone has to be in charge, and they should be able to do something. I would be up in arms also. Ridiculous. Why do a surgery on 12/23 when you know you are letting all your higher ups off the next week and the doctors only 'want' called in life and death situations. What a crock.
I agree. That doesn't sound right. Around here someone is on call and doing rounds 365 days a year. All I could think is that this surgery is so specialized that the regular staff Doctors don't want to be interfere with the Surgeons cases. If that is the case then the Surgeons need to be available. I think there is a standard of care missing or some serious communication issues.
tommu56
Bronze Member
I think a call to the president or administrator in order find out were their office is and go camp out there
Make some noise in the lobby if you have to!
What about the head of nursing there has to be a boss there.
Have a sit down with the Dr that did the surgery if he cant get results sick a lawyer on him too.
Some one is on call tell them they have 2 hours to get they or they will be hearing from your lawyer in 2 hours and one minuet and stick to your gun
cal the local news
tom
working woman
New member
Brent, if you bring her home here you might run into the same situation here with the drs being on vacation. Just something to think about.
Also, have you contacted your friend dr from the other forum and talked to him. Maybe he can help you rectify some of this?
Also, have you contacted your friend dr from the other forum and talked to him. Maybe he can help you rectify some of this?