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Our New Old Place

Managed to drive a 2" staple thru the tip of my middle finger yesterday
Rather quick
Place hand too close to the work
Press trigger
Those air driven staplers do the job thru meat

Next, I'll see how it does thru bone

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Not a whole lot goin' on, so, thought I'd go ahead and fill the inventory shelf with tiny avian abodes.
Since it's gonna be a busy spring and summer

This one, in semi finished, I might not let go
The roots so wondrously wrap around the entry

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I screw the roots on from the inside so nothing showing

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Gotta say, I'm lovin' this Ryobi job light I got myself for Christmas
Love the clamp feature
and the intensity
and the batteries match my other Ryobi stuff

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Been a while

Busy spring and summer

A special time last week
Son and his girls stopped by

His eldest girl has Dravet syndrome
Bouts of epileptic seizures 24/7
Heavy meds
She's not expected to see her teens

I don't know how he does it
He's been the nurse
the doctor
the EMT
and
The Father...the single parent


Little ones are so precious
This one, more so

I savor these moments

The Lord said it best
' Suffer little children, and forbid them not, to come unto me: for of such is the kingdom of heaven.'

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faith and me july 2023.jpg

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They came by again a couple days ago, to get her meds
My son clued me in on what's to be expected from here on out

She's entering puberty
This is when there's a dramatic increase in seizures with Dravet syndrome kids
It's why they're not expected to see much of their teens

They continue to increase until they just don't recover from what becomes the last one

My son has been incredible about all this
Savoring each moment with her
Making her years as good as possible while he has her

It's a pretty tough call, as she's quite spoiled
Much like Helen Keller's early years

I know I couldn't handle it, long term
 
A special time last week
Son and his girls stopped by

His eldest girl has Dravet syndrome
Bouts of epileptic seizures 24/7
Heavy meds
She's not expected to see her teens
Update;

Son and daughters just left from Christmas dinner we had three days ago

Very unplanned
His diesel truck wouldn't start
Worked on it for a couple days
Changed filters and such
Air in the fuel line
Primed it, got the air bled out
It'd now start, but quit
Turns out the computer would shut it down
Needed a program wipe and reboot
Got that done this morn, and off they went

We're a tad spent from those three days
and the girls were faunching at the bit

But
Turned into a blessing
The eldest girl (now 10) is experiencing more and more seizures

and a new twist: gasping for breath

We may not have her much longer
So, we consider the truck breakdown a wonderful blessing
 
Update;

Son and daughters just left from Christmas dinner we had three days ago

Very unplanned
His diesel truck wouldn't start
Worked on it for a couple days
Changed filters and such
Air in the fuel line
Primed it, got the air bled out
It'd now start, but quit
Turns out the computer would shut it down
Needed a program wipe and reboot
Got that done this morn, and off they went

We're a tad spent from those three days
and the girls were faunching at the bit

But
Turned into a blessing
The eldest girl (now 10) is experiencing more and more seizures

and a new twist: gasping for breath

We may not have her much longer
So, we consider the truck breakdown a wonderful blessing
It breaks my heart, Gary. Just the thought losing a child/grandchild. My prayers are with you and your family. Hugs.
 
It breaks my heart, Gary. Just the thought losing a child/grandchild. My prayers are with you and your family. Hugs.
It will be a heart break, one day
As for now, each moment with her is so very precious

She's saying one or sometimes two or three word sentences

Her word for me, is 'Hug'
No waste of words there
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Being with her solidifies a little thing I put together from a pic I took at the cabin;
savor.jpg
My prayers are with you and your family. Hugs.
Never enough of them
Thank you @Crumpy
Means a lot
 
I didn't see it right away (macular degeneration is kicking my hind end), but my wife asked what's wrong with his antler

Must have been a mishap during the velvet stage

It least it's not growing into his face......yet

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