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NorthernRedneck

NorthernRedneck said:
... One day I feel fine and can do things. The next day I can barely stand without being in pain.
Click to expand...
Dragonfly Lady has fibromyalgia and several bad discs. Nothing nearly as bad as your problems but as a result she is
limited in what she can do. She too has days where she can do whatever and then the next major pain. What we have noticed
is that those days definitely come in pairs, with the pain day coming right after the 'whatever' day. If she does only about
half of what she believes she can do on those good days, she
doesn't have nearly as much pain the next day.

If your days match up as hers do the same stop-while-you're-ahead thing might help make the next day be a
lot less painful. Just a thought.

 
Yep. Sounds allot like my life. I have a flare up and I'm down for the count for two days. Then it improves and I go from dragging my feet with a walker to walking almost semi normal without support. Yesterday was a good day. I barely used the cane. Now. It's almost 3am and I can feel the legs and feet tingling. The back is so sore I have a hard time getting comfy.

I think part of my issue is I try to avoid taking percs at night before bed since I don't want to depend on them.

I hope dragonfly lady is able to feel better soon. For me, yes, the broken bones caused issues. But those are healed. It's the remaining damaged muscles and nerves that are the problem. Hell. How many people can say that they survived being thrown into a vehicle head first then ran over by someone doing highway speed. That's bound to do some serious damage.

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So I've stumbled across something by accident on friday when I went to refill a prescription for my pain meds. First, the bad news. They couldn't refill it as there was not another refill on file from the doctor. I don't see him again till march 7th. So it's either I go sit in emerg for hours to see a doctor for a two week script for my pain med(percocet), or I try an over the counter pain reliever to tide me over to the 7th. Then I remembered that I had some equate muscle and back pain relief pills at home from last year before the accident. I decided to try once in place of the percocet at my next pill time.

SUCCESS!!! I felt way better. Rather than rush to a decision based on just one pill, I decided to substitute both percs yesterday and this morning with the over the counter med. Last night was the first night in days I slept through the night in bed and didn't wake up in pain. I haven't barely needed the cane yesterday and today. I went to the pharmacy to speak with a pharmacist to see if this would be a good choice. He agreed with me. I did have concerns with switching to this med as the warnings all indicated to avoiding it if you have liver problems. And we all know what kind of liver problems I've been having. The pharmasist basically told me that if my liver can handle breaking down the percocet and distributing it to the body then this med should be no problem since the liver is partially responsible for distributing all the meds a person takes to the body. Plus, my body was most likely building a tolerance to the percocets which isn't a good thing.

So I've found a good pain med that works and makes my back feel twice as good as it did on the percocet. There's still quite a bit of stiffness there but the sharp pain is gone for now. This is HUGE for me as I almost feel well enough to do pretty much any activity right now. I don't want to push it though as this could be short-lived.

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The back is feeling better but I can sure understand those who are trying to get off the oxys after being on them for years. I feel better but wow. The shakes. Couldn't get settled last night in bed. Tossing and turning. Still ended up on the chair but at least I slept. Taking this new med is working so far. Feels like someone took the hot knife out of the middle of my back. All that's left are the sore muscles.

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Spoke too soon. Been having fast onset fever for 5 days. I'm back at emergency with a climbing fever.

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This is more precaution considering everything I've been through. I'd hate to sit at home and find out later there's something wrong with my liver

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They aren't messing around. 7 viles of blood. Urine. Iv with antibiotics. Xray. And CT scan all in 2 hrs.

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Best wishes for getting back home soon Brian.
 
Feel fine now other than being exhausted from lack of sleep. I'm still waiting to see if they are admitting me to a bed upstairs.

I guess they're waiting to see the results of this mornings blood work. Having experience in dealing with the liver with one of the kids I work with has taught me to not mess around with it. If left too long it could lead to liver failure.
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So I'm admitted again to the hospital. More of a precaution as they took a sample of the bile coming out and it showed live bacteria meaning infection. I'm getting rather tired of being in the hospital. But I know it's for the best. They gave me some strong antibiotics via IV. Things are improving. Hopefully I can go home tomorrow.

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Glad the Doctors are on top of that infection..

Hang in there, it will get better. You have spring and summer to look forward to.. :smile:

I just found out the man who had owned the 80's bike I bought was killed in a snowmobile accident. He didn't fasten his chin strap, and his helmet was thrown clear in when the ski of the sled was caught in a culvert at about 60mph. The head injuries were to great..

Every time last summer I rode that bike, I think I thought of you, and what your dealing with after your accident. Now I am not sure what I will do with it. This stuff is just to real.. :unsure:

Regards, Kirk
 
Can't blame the bike for anything. Sorry to hear about his accident.

I had a goldwing I sold a few years ago to a guy down the street. That winter he slammed into the back of a truck on his snowmobile.

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This sucks. With infection comes discharge. The tube going into my side moves a bit with every breath. Now that there's infection there the area is crusted up a bit prohibiting the tube from moving. So now every deep breath creates a burning pulling sensation in my side. If it's not one thing it's another. Oh well. Tis what it is.

One thing that irritates the hell out of me though is when I run into someone I haven't seen in a while and they immediately say "you're looking good. Are you back at work yet?" I don't know why but that pisses me off. Like common......I'm walking with a freaking walker. I've got a drain bag and I'm waiting for surgery. I go to physio 3 times a week. I see two specialists regularly as well as my family doctor. And I will be starting a six week pain management program in a few weeks. Do I look like I'm ready for work? Ugh. Gets frustrating.

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Fast forward a couple weeks and I'm not doing so great. It all started February 17th. I started feeling sick at 10pm. Spent the night in the bathroom (use your imagination ) I went for a scheduled dye test where they injected dye into my liver to see where the bile duct is. They only saw one end of it. I was sick till Saturday afternoon. Fast forward to Tuesday and a sudden onset of fever sent me to the hospital where I was admitted for two days on iv antibiotics. They sent me home with a strong script. The script ran out last week. The next day I began feeling sick again. That's lasted on and off till now accompanied by the runs. Once again I started feeling sick at supper time. 12 trips to the bathroom and three explosions with my head in a bucket later I'm starting to get worried. Most symptoms I've had point to liver problems. [emoji37]

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Last edited:
Just some advice:
Seriously - not joking at all because what you have going is very SERIOUS - But you have to pitch a bitch with the powers that be. Your Doctors , the hospital, whoever, DO what ever it takes. If you are to sick to do it yourself get whoever in your in your family (the more the better) is the meanest to really get on the doctors, etc. Do whatever it takes.
Doctors & hospitals get complacent. I don't like the term "be your own advocate" but that's what it takes. Keep after them.
All the best.
 
Oh trust me. I'm on it. I've been to the walk in. To emerge. On the phone with both the family doctor and specialist here. When they gave me the name of the surgeon I was referred to I was on the phone with that office looking for answers.

Now I can understand what my kid from work went through. He's been getting sudden fevers and sickness just like me. He's 13 and on the list for his second liver transplant.

I pretty much know what the outcome is going to be with mine. Sadly it's a waiting game and all I can do is bitch and complain to everyone involved with my case.

So yesterday I was feeling feverish but didn't have a temperature. Today. I felt fine all morning. After my son's appointment I began having a chill. I went home to check and discovered my temperature was very low. Beginning stages of hypothermia type of low. I quickly put on a couple sweaters and wrapped up in a blanket. It's been fine since.

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.....and the saga continues....

After I saw the family doc last monday he said if I get sick again to call his office and he'd send over a new script for antibiotics. Well, guess who got sick again that night. Yep. I'm now back on a heavy dose of antibiotics to kill the infection in my liver. No fever since restarting the antibiotic.

but......

I started noticing bloating in the liver area on Thursday much like it was before the drain was inserted. Also, the amount of fluid discharge had reduced to almost a trickle. Pretty easy to figure out what happened. The liver became infected. The drain tube inside me got plugged with a thick sludge. And everything started backing up inside. So I mentioned it to my nurses that come every tuesday and friday. They contacted my liver doctor right away who ordered a saline flush to back flush the drain tube inside me. So now I have the nurses coming on a daily basis to flush the line. This is almost as fun as having diarhea. Seems like every day is a new battle.
 
So I got good news and bad news today. First the good news. I'm scheduled for a scope at the end of the month to finally get a clear picture of what's happening in the liver.
Now the bad news. Turns out the boating in my stomach area isn't the liver. I've got another issue to deal with. Since they basically had to gut me from the ribcage to my wasteline my stomach muscles have developed a hernia which will eventually need to be dealt with.

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I would not say the Hernia is bad news Brian....at least you now know the problem and it can and will be dealt with.

Continued prayers in your quest to getting back to full health.
 
It's not overly terrible and could be a lot worse I guess. Just seems like every time I turn a corner I've got another issue to deal with. At least I'll finally got answers after the scope.

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Could be a lot worse news than a hernia. Glad to hear they are starting to figure out some of these issues so they can be dealt with to get you back in shape.
 
The hernia itself wouldn't be a huge issue. It's like everything else with me. The back is in a constant state of pain. The stomach muscles were basically cut in half when they originally went in to repair the liver. One trick to help with the back pain is to tighten up the ab muscles when I'm walking. Well, I did that and ended up with the hernia. So now physio is concentrating on my ab muscles as well. I'm going in for the scope today. It's either they are able to find both ends of the bile ducts and reconnect them with a stint or they don't find both ends and I get sent to Ontario's cesspool (Toronto) for an extensive surgery which could include removing part of the liver.

I'm not too worried about today's surgery. It's the unknown that worries me. I'm more scared of what they might find today. Heck. Worse case scenario is they get in there and discover that the damage is too great and I need a liver transplant because they can't fix the issue.

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Quick update. Looks like he was able to find the bile duct and it was actually healed but was also blocked by debris from the accident. From what I understand he sliced it open and attempted to remove the blockage. I still have the drainage bag for now as they want to see if everything is going to flow freely now. Fingers crossed that it's fixed

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Had a rough couple days fighting off a fever again as well as constipation which brings a whole new meaning to the word pain. The hernia is really doing a number on my stomach. I slept a total of about three hours last night and awoke in excruciating pain due to gas build up right around the area where the hernia is located.

Working out has come to a standstill now due to the hernia. I'm still getting a lot of discharge coming from the drain despite attempts to open up the blockage in the bile duct.

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